Tell Republicans: Stop Stalling Life-Saving ALS Research

ALS patients should not have to watch life-saving research funding expire because Republicans in Congress can't get their act together.

The ACT for ALS Reauthorization Act is exactly the kind of bill a functioning Congress should be able to pass without drama. It is basic. It is bipartisan. And it would continue critical programs that support ALS research, drug development, and expanded access to investigational therapies for people living with ALS and other rare neurodegenerative diseases.

The House passed a version. The Senate passed a version. The remaining task for Republicans in Congress is simple: Finish the job before the current authorization expires on September 30, 2026.

Tell Republican leaders in Congress: Stop stalling and complete final passage of the ACT for ALS Reauthorization Act before the deadline.

ALS is a fatal neurodegenerative disease with no cure. Families facing this diagnosis are already fighting an impossible clock. They should not also have to fight delays caused by leaders who cannot get a bipartisan bill across the finish line.

This bill is a lifeline for patients, families, researchers, and advocates working toward treatments and a cure. When both chambers have already acted and the deadline is closing in, failure to finish is not a mystery. It is a leadership failure.

Republican leadership controls the congressional agenda. That means Republican leaders have the power to prioritize this bill, resolve the remaining differences, and make sure ALS research funding does not fall through the cracks.

Add your name now and demand Republican leaders stop stalling life-saving ALS research.

The petition to Republican leaders in Congress reads: "Complete final passage of the ACT for ALS Reauthorization Act before September 30, 2026. Do not let congressional dysfunction interrupt life-saving ALS research, drug development, or expanded access to investigational therapies for people living with ALS."